Tuesday, June 19, 2012
What have we been up to this past month?
This past month has been good but busy. Faith's potassium level is under control with diet and medication. She is having blood work and seeing her Nephrologist (kidney doctor) once a month now. She had an MRI on Monday which was ordered only because it is routine so they can see how things look now. Her MRI could not have went more smoothly. She tolerated not eating or sleeping very well. She had AWESOME Nurse Sue who took such good care of her and Mommy and Grandma Smith too! She has an appointment with her Neurosurgeon to discuss the MRI tomorrow. Next week she has an ultrasound and visit with her Urologist for a follow up. Hopefully he will give us a better idea when her reconstructive surgery to correct her Colostomy (stool), Vaginostomy (vagina), and Vesicostomy (urine). July will be another busy month of appointments.
We are very pleased with Faith's progress. She is doing better than we imagined. She has just started rolling over from her stomach to her back. Yesterday before her MRI she rolled from her back to her side. She has lots of happy time lately and we are loving it!
We are very pleased with Faith's progress. She is doing better than we imagined. She has just started rolling over from her stomach to her back. Yesterday before her MRI she rolled from her back to her side. She has lots of happy time lately and we are loving it!
6 Month Pictures!
Faith is 6 months old already! Here is a preview of her pictures taken by her fabulous Aunt Amy!
http://www.acarrollphotography.net/2012/06/baby-faith-6-months/
http://www.acarrollphotography.net/2012/06/baby-faith-6-months/
Thursday, May 10, 2012
Still Home and Doing Very Well
Faith's last hospital stay was the shortest stay to date. We were there for literally 24 hours. We are so thankful they were able to get her potassium down and stable so we could get back home. Helen DeVos Children's Hospital and their staff are great but there is no place like home! Faith has been doing very well since coming home 2 weeks ago. She is sleeping so much better and goes down very easily most of the time. She is a much happier baby because she is feeling good. She is having lots of happy awake time and loves to play. She loves to be talked to, read to, and sang to. She is cooing and smiling a lot these days. This all makes for a much happier Mommy and Daddy! We still feel like we are recovering from the last 5 months of hospital stays, doctors appointments, and very little sleep but feel like each day things are getting little better. Faith still has quite a few appointments but not as many each week. She has physical therapy and occupational therapy both once a week for an hour each. A visiting nurse comes to weigh her, check her vitals, and check on her once a week. About once a week we have a visit downtown to one of her various specialist who each like to see her about once a month. She was having to have blood work done every few days before her hospital stay. Now that her potassium level is good, she only has to have it done every other week. Once the level stays good consistently, she should only have to have it done once a month. We are hopeful that her level will stay stable so she doesn't have to have blood work so often. They have a hard drawing her blood and it is not a fun experience for anyone involved. She is such a little trooper!!!
Love and Hugs,
The Sunde's
Love and Hugs,
The Sunde's
Tuesday, April 24, 2012
Admitted Again!
Faith has been doing well at home since she came home from the hospital. She has been having her potassium checked periodically and it has been coming down. Today her potassium was back up to the level it was when she was last admitted. They called with these results and told us we had to bring her in right away to be admitted. They are giving her treatments to bring the potassium down. They have also changed her to a new formula concoction. At this point, we do not know why her kidneys are not doing their job. She should only have to be admitted for a few days. Thank you for all of your love and support.
3 Month Pictures
A preview of Faith's 3 month pictures taken by my bestie, the fabulous Amy Carroll! We will treasure these forever! http://www.acarrollphotography.net/2012/03/baby-faith-3-months/
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