Faith's last hospital stay was the shortest stay to date. We were there for literally 24 hours. We are so thankful they were able to get her potassium down and stable so we could get back home. Helen DeVos Children's Hospital and their staff are great but there is no place like home! Faith has been doing very well since coming home 2 weeks ago. She is sleeping so much better and goes down very easily most of the time. She is a much happier baby because she is feeling good. She is having lots of happy awake time and loves to play. She loves to be talked to, read to, and sang to. She is cooing and smiling a lot these days. This all makes for a much happier Mommy and Daddy! We still feel like we are recovering from the last 5 months of hospital stays, doctors appointments, and very little sleep but feel like each day things are getting little better. Faith still has quite a few appointments but not as many each week. She has physical therapy and occupational therapy both once a week for an hour each. A visiting nurse comes to weigh her, check her vitals, and check on her once a week. About once a week we have a visit downtown to one of her various specialist who each like to see her about once a month. She was having to have blood work done every few days before her hospital stay. Now that her potassium level is good, she only has to have it done every other week. Once the level stays good consistently, she should only have to have it done once a month. We are hopeful that her level will stay stable so she doesn't have to have blood work so often. They have a hard drawing her blood and it is not a fun experience for anyone involved. She is such a little trooper!!!
Love and Hugs,
The Sunde's
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