On Monday, we had a growth ultrasound at
Spectrum Health Maternal Fetal Medicine.
Our baby is now 4 lbs. 1 oz. (66th percentile), has a normal
heart beat, and normal amniotic fluid level.
They still feel very strongly that he/she has Dandy-Walker
Syndrome.
After the ultrasound we met with a
Neonatologist and a Social Worker at the Helen DeVos Children’s Hospital. The Neonatologists role is to coordinate care
for the baby once he/she arrives. The
Social Workers role is to help is with supplemental insurance and
developmental/educational programs we may be eligible for as well as answer any
questions and concerns we have. We
discussed what we may expect when our bundle of joy arrives and had a tour of
the NICU (Neonatal Intensive Care Unit). He/she is expected to go to the NICU either
immediately or shortly after delivery and they have no idea for how long at
this point.
What’s
Next?
Dr. Madeline
Chadehumbe (Pediatric Neurologist
@Helen DeVos Children’ Hospital) - November 8
Perinatal Visits –
November 16, November 30, December 21, December 28, & January 4
Growth Ultrasound
– December 14
We are very anxious
to meet with Dr. Chadehumbe next week.
We hope and pray that she can provide us with some answers and additional
information on our miracles condition.
Please keep praying for a miracle!
Thank you for all of your love and support!
With Love,
Steve and Michele
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