12/23/11 – Mommy changed my colostomy bag
on her own for the first time
12/24/11 – My Feeding tube was taken out
because I am consistently taking my feedings by bottle. First time in my bouncy seat and loving it!
12/25/11 – My First Christmas! Mommy & Daddy changed my colostomy bag
together.
12/26/11 – I can eat when I want and how
much I want because I am such a good eater.
Daddy is sick so he couldn’t come see me today.
12/27/11 – Mommy and Daddy are both sick
and need to stay home to get better so they can take me home in a few days.
12/28/11 – I passed my car seat test as
required before I can go home.
12/29/11 – Getting ready to go home
tomorrow
12/30/11 (25 days old) – Discharged today. I was home about 30 minutes before my shunt
started leaking badly. Mommy and Daddy
rushed me to the ER at DeVos Children’s Hospital. I was readmitted to the NICU, not feeling
well, and not my normal sweet self.
12/31/11 – Faith is doing okay... grumpier than normal and not
feeling well still. She is just not her sweet self yet. Not eating much yet and
getting fluids, antibiotics, and Tylenol.
1/1/12 - Faith is doing okay today but still sleeping more than
before. She is eating more consistently and off of IV fluids. She is still
receiving IV antibiotics. Her shunt was adjusted. They will continue to monitor
her closely.
1/2/12 - Faith is doing a little better each day. Today she is
having some awake time which she hasn't had since before her shunt started leaking.
They will continue to monitor her closely. No word on when she will come home.
1/3/12 (4 weeks
old) Faith is doing well today. Having more awake time and
eating great. She continues to receive antibiotics (in case of infection) and
is being monitored closely.
1/4/12 -Faith's brain shunt started leaking again this morning.
She had surgery to have it removed and to put in an external shunt. After about
2 weeks they will put in a new shunt.1/5/12 - Faith is doing well today
and seems comfortable. She is still on
ventilator because she has to be sedated for MRI @ 4 pm. MRI rescheduled to 11:30 pm
1/6/12 - Faith is doing okay today. MRI was finally done @ 1 am.
No results from that until probably tomorrow. She is still on the ventilator
but hope to have her off that by tonight.
1/8/12 - Faith has been doing well. She was taken off the
ventilator on Friday around 4pm. She is back to full feedings already and is
such a good eater. The Pediatric Neurologist came to see her on Saturday. She
is very pleased with her strength and abilities. She said that she is doing
everything infants her age should do! :) She told us to start a college fund.
This is the best news ever!
1/10/21 –
7:30 am - Faith is in surgery to have the fluid/mucus
drained from her vagina. ShannyBear (our 7 year old
Kitty) is also having surgery today to remove a tumor. 2 out of the 7 of our
little family having surgery in one day is just unacceptable ... but necessary.
Keep us in your thoughts and/or prayers. We appreciate all the support!
10:08 pm - Faith's surgery was twice as long as
expected but she did well. She *should * be coming off the ventilator in the
next few hours. She is doing well and has her favorite nurse Jen tonight. So
Mommy is going to get some much needed rest after a very long day!
1/11/12 (Due Date
/ 37 days old) - Faith was off the
ventilator at 10pm last night. She had a very restful night. Very grumpy this
morning but was very happy after getting her first feeding at Noon. Over all
having a good day! :)
