Highlights since last blog update

12/23/11 – Mommy changed my colostomy bag on her own for the first time

12/24/11 – My Feeding tube was taken out because I am consistently taking my feedings by bottle.  First time in my bouncy seat and loving it!

12/25/11 – My First Christmas!  Mommy & Daddy changed my colostomy bag together.

12/26/11 – I can eat when I want and how much I want because I am such a good eater.  Daddy is sick so he couldn’t come see me today.

12/27/11 – Mommy and Daddy are both sick and need to stay home to get better so they can take me home in a few days.

12/28/11 – I passed my car seat test as required before I can go home.

12/29/11 – Getting ready to go home tomorrow

12/30/11 (25 days old) – Discharged today.  I was home about 30 minutes before my shunt started leaking badly.  Mommy and Daddy rushed me to the ER at DeVos Children’s Hospital.  I was readmitted to the NICU, not feeling well, and not my normal sweet self.  

12/31/11 – Faith is doing okay... grumpier than normal and not feeling well still. She is just not her sweet self yet. Not eating much yet and getting fluids, antibiotics, and Tylenol.

1/1/12 - Faith is doing okay today but still sleeping more than before. She is eating more consistently and off of IV fluids. She is still receiving IV antibiotics. Her shunt was adjusted. They will continue to monitor her closely. 
1/2/12 - Faith is doing a little better each day. Today she is having some awake time which she hasn't had since before her shunt started leaking. They will continue to monitor her closely. No word on when she will come home. 
1/3/12 (4 weeks old) Faith is doing well today. Having more awake time and eating great. She continues to receive antibiotics (in case of infection) and is being monitored closely.
1/4/12 -Faith's brain shunt started leaking again this morning. She had surgery to have it removed and to put in an external shunt. After about 2 weeks they will put in a new shunt.1/5/12 - Faith is doing well today and seems comfortable.  She is still on ventilator because she has to be sedated for MRI @ 4 pm.  MRI rescheduled to 11:30 pm 
1/6/12 - Faith is doing okay today. MRI was finally done @ 1 am. No results from that until probably tomorrow. She is still on the ventilator but hope to have her off that by tonight. 
1/8/12 - Faith has been doing well. She was taken off the ventilator on Friday around 4pm. She is back to full feedings already and is such a good eater. The Pediatric Neurologist came to see her on Saturday. She is very pleased with her strength and abilities. She said that she is doing everything infants her age should do! :) She told us to start a college fund. This is the best news ever!
1/10/21 – 
7:30 am - Faith is in surgery to have the fluid/mucus drained from her vagina.  ShannyBear (our 7 year old Kitty) is also having surgery today to remove a tumor. 2 out of the 7 of our little family having surgery in one day is just unacceptable ... but necessary. Keep us in your thoughts and/or prayers. We appreciate all the support!

10:08 pm - Faith's surgery was twice as long as expected but she did well. She *should * be coming off the ventilator in the next few hours. She is doing well and has her favorite nurse Jen tonight. So Mommy is going to get some much needed rest after a very long day! 

1/11/12 (Due Date / 37 days old) - Faith was off the ventilator at 10pm last night. She had a very restful night. Very grumpy this morning but was very happy after getting her first feeding at Noon. Over all having a good day! :)