Faith was admitted to the hospital again last week. On Monday night she started acting very irritable and uncomfortable just like she did 2 weeks ago. Her feedings gradually decreased and by late on Tuesday afternoon she didn't want to eat at all. We thought she might have another bowel blockage because she was acting identically to what she did when she had one 2 weeks ago and was admitted for 2 days for this. We took her to the ER at Helen DeVos Children's Hospital. She did not have a blockage but had an extremely high potassium level. This is a concern because it can cause heart and kidney problems. It can also cause muscle pain and slow digestion. Thankfully, both of her EKGs turned out good which means her heart was fine. They were able to get the potassium level down with medication. After 2 days she was sent home with a new medication to treat this and special formula. She is not allowed to have breast milk any longer. It is difficult for me that she is not able to have breast milk but at the same time I am glad to be able to quit pumping after over 4 months. We have a lot of breast milk in the freezer and plan to donate it to NICU babies! :) Faith now has a new specialist to see, a Nephrologist (kidney doctor).
Since coming home, Faith has been doing much better. She is happy because she feels better! She still likes to eat every 3-4 hours. If we are lucky, we get a 5 hour stretch during the night. She now weighs 11 lbs. 3 oz. She just grew out of her 0-3months clothes because she is too long for them.
Thank you for all of your love and support!
Sounds like you have gained much on this last visit. So glad for you.
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