Admitted Again!

Faith has been doing well at home since she came home from the hospital.  She has been having her potassium checked periodically and it has been coming down.  Today her potassium was back up to the level it was when she was last admitted.  They called with these results and told us we had to bring her in right away to be admitted.  They are giving her treatments to bring the potassium down.  They have also changed her to a new formula concoction.  At this point, we do not know why her kidneys are not doing their job.  She should only have to be admitted for a few days.  Thank you for all of your love and support.

3 Month Pictures

A preview of Faith's 3 month pictures taken by my bestie, the fabulous Amy Carroll! We will treasure these forever! http://www.acarrollphotography.net/2012/03/baby-faith-3-months/

Faith with Jewels

Another Hospital Stay

Faith was admitted to the hospital again last week.  On Monday night she started acting very irritable and uncomfortable just like she did 2 weeks ago.  Her feedings gradually decreased and by late on Tuesday afternoon she didn't want to eat at all.  We thought she might have another bowel blockage because she was acting identically to what she did when she had one 2 weeks ago and was admitted for 2 days for this.  We took her to the ER at Helen DeVos Children's Hospital.  She did not have a blockage but had an extremely high potassium level.  This is a concern because it can cause heart and kidney problems.  It can also cause muscle pain and slow digestion.  Thankfully, both of her EKGs turned out good which means her heart was fine.  They were able to get the potassium level down with medication.  After 2 days she was sent home with a new medication to treat this and special formula.  She is not allowed to have breast milk any longer.  It is difficult for me that she is not able to have breast milk but at the same time I am glad to be able to quit pumping after over 4 months.  We have a  lot of breast milk in the freezer and plan to donate it to NICU babies! :)  Faith now has a new specialist to see, a Nephrologist (kidney doctor). 

Since coming home, Faith has been doing much better.  She is happy because she feels better!  She still likes to eat every 3-4 hours.  If we are lucky, we get a 5 hour stretch during the night.  She now weighs 11 lbs. 3 oz.  She just grew out of her 0-3months clothes because she is too long for them. 

Thank you for all of your love and support!

4 Months Old!

Faith will be 4 months old Thursday.  She was doing fairly well until this past Saturday night.  She was extremely fussy, inconsolable, and had a lot of swelling along her shunt tract.  Thankfully, her shunt was not infected!  She had a partial blockage in her bowel that worked itself out.  She did have to spend Saturday to Tuesday at Helen DeVos Children's Hospital.  We are thankful to be back home with her so soon.