February 2013

Faith turned 15 months old today!  It is amazing how time flies.  February was a busy and tough month.  December to March is a notoriously busy time for me at work so that just adds to an already busy schedule.  Faith is doing well and making good progress with Occupation Therapy (OT) , Physical Therapy (PT), Vision Therapy, and Feeding Therapy.  She has OT, PT and Feeding Therapy each once a week.  She had Vision Therapy once a month and a visit from her Early On Infant Teacher twice a month.  They will be introducing Speech Therapy soon too.  Those visits along with the specialist that she sees, makes for a very busy little girl.  Most weeks she has 4-5 appointments. 

We are very disappointed that after 2 tries, her cyst is still pressing on her brain stem.  We are very thankful that she is doing well and isn't exhibiting any symptoms.  Her Neurosurgeon ordered a follow up MRI in late June.  In the meantime, we just need to watch her close for any symptoms like trouble breathing or swallowing.

On Friday, we have an appointment with her Urologist to talk about her reconstructive surgery.  He will work with her General Pediatric Surgeon.  Her Urologist will reconstruct her Vesicostomy (urine) and Vaginostomy (vaginal opening).  Her General Pediatric Surgeon will reconstruct her Colostomy (stool).  There is no rush for this surgery, however, the older she gets to harder it will be because she is more aware of everything going on. 

Here are a few more pictures taken in February 2013:


Playing with my Kitties

Green Beans are Yummy!

Dani Grace (my cousin Jill's daughter) & Faith having a play date with their Grandma's